This is the story of a mother's spiritual journey, interwoven with the practical challenges of parenting and accessing support for a severely disabled daughter. It is an honest and painful account of one family's struggles but also a clear testimony of God's grace and care, even in the bleakest times.
I found myself challenged by the justified anger directed at both individuals and systems that stood in the way of Cara reaching her potential, and with which her family had to battle day after day. Our society's attitudes and actions are laid bare in an account where no profession – medicine, education or social services – comes across in a universally good light.
The key messages include choosing our words carefully as even throwaway lines can have a profound effect. We are encouraged to offer time and understanding when we have no cure, to avoid imposing our own views of disability, to offer practical support rather than platitudes, and to be advocates for the needs of the vulnerable.
As Christian health professionals we will all, either personally or professionally, look after disabled people and their families. I highly recommend this book for all who would like to do better in standing alongside them.